Myelopathy.org is a non-profit organisation founded to raise awareness of cervical spondylotic myelopathy [CSM] and support patients, carers and professionals who live and deal with it.
What is it?
CSM is caused by deterioration in the spine in the neck leading to compression of the spinal cord and symptoms such as “numb” and “clumsy” hands, loss of coordination, imbalance, bladder and bowel problems, and weakness that can progress to severe paralysis.
Why does it matter?
Aside from the significant and disabling symptoms, CSM is a very common condition; it is the most common cause of spinal cord damage and it will probably affect most people if they live long enough!
What are we doing about it?
Our objectives are to
How can you help?
Join the conversation; send us your ideas and stories, support others going through similar challenges. Lets take the battle to CSM.
Dr. Mark RN Kotter, MD MPhil PhD (cantab)
Founder of Myelopathy.org, is an academic neurosurgeon based at The University of Cambridge with a sub-specialist interest in spinal neurosurgery. He is also a Principal Investigator at the Department of Clinical Neuroscience, John van Geest Centre for Brain Repair.
As clinician he is involved in the care of patients with CSM. His ambition is to advance the way CSM is treated based on a better understanding of the course of CSM, and by identifying the best care for patients. His translational research investigates the cellular and molecular mechanisms underlying CSM in order to develop novel regenerative therapies @KotterLab.
Dr. Benjamin Davies, MBChB. Hons BSc MRCS
Director of Myelopathy.org, is a NIHR funded, trainee academic neurosurgeon at Cambridge University Hospitals NHS Foundation Trust. A graduate of the University of Manchester in 2012, he completed his initial clinical training in Salford Royal before taking up his post in Cambridge. His research interests include advancing clinical care of CSM patients and exploring patient and carer perceptions of CSM.