Effective research targets the needs of patients. An article in the Lancet, identified that 85% of US health research funding was wasted and one of the factors which contributed to this was research which did not target the needs of patients.
Many patients with CSM are often left with lasting neurological symptoms, despite surgical therapy. This chronic disease burden has significant impact for them and those around them. Myeolapthy.org is conducting research to identify the needs of CSM patients, to help steer research funding appropriately. These questions have now been incorporated into our main survey, but if you have already completed this you could find these specific questions here.
Help steer research; let Myelopathy.org know what is important to you
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