Effective research targets the needs of patients. An article in the Lancet, identified that 85% of US health research funding was wasted and one of the factors which contributed to this was research which did not target the needs of patients.
Many patients with CSM are often left with lasting neurological symptoms, despite surgical therapy. This chronic disease burden has significant impact for them and those around them. Myeolapthy.org is conducting research to identify the needs of CSM patients, to help steer research funding appropriately. These questions have now been incorporated into our main survey, but if you have already completed this you could find these specific questions here.
Help steer research; let Myelopathy.org know what is important to you
The spinal cord shows little natural desire for repair and is highly vulnerable to external compression. Patients with CSM, despite surgical intervention, can often be left with lasting disability. Saving the spinal cord will likely require some sort of assistance and a group in Canada have shown promise for Riluzole in animals.
Dr Kalsi-Ryan is a practicing physiotherapist and clinical researcher at the Toronto Western Hospital. She talks about the supportive role of physiotherapy in the treatment of CSM, offering help with symptoms but not able to undo the 'structural' changes of CSM.
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